Sophia's pic in 3d
+ Well- we had our 24 week ultrasound yesterday. nothing really new has happened. Her arms, legs and ribs have only grown a little- they are measuring at 17 weeks. Which means she is now at a 7 week delay (last time was 5 weeks). Dr Adelberg says that it's not abnormal for kids in this condition to continue to grow slower and slower and see a bigger delay as time goes along unfortunately.
+ She still has clubbed feet (but does only have 10 toes and 10 fingers- we made them count). she still has a small chin and the thickening that was on her neck, also now shows down thru her chest. you don't normally see babies this young having any fat on them yet. so that is why the fat/skin thickness on her neck and chest are abnormal. her head and abdomen- look great still- they are measuring 24 weeks and everything looks like it is developed normally.
she also explained something interesting to us- that her chest size does matter, but more importantly, it matters that her lungs mature. a kid with a small chest size can survive if their lungs develop enough to function and sustain life. so while size does matter to an extent, more importantly in those last few weeks of the pregnancy it is more important that they develop and mature the best to their ability.
+ there is no way to tell until she is born if her lungs have developed enough to survive, so it will be a waiting game till she arrives. until then we will continue to monthly ultrasounds and measure what growth we can. we also will not be able to tell what kind of dwarfism she has until she arrives, as we are not going to go through any more genetic tests- there are just too many possibilities. our dr is going to send Sophia's case to be discussed at UCLA with some people who like to study and specialize in fetal syndromes and diagnosing what they can. we probably won't hear back any ideas they have for 6-8 weeks. they may not come up with anything significant, but it will be interesting to see what they think.
+ other than that- I did read and absolutely relished every minute of - I Will Carry You by Angie Smith. It is a woman/family that went through almost exactly what we are going through (except their situation was for an absolute fatal diagnosis of a different syndrome). it was so good just to cry and cry and to read someone thinking/feeling every thing we are feeling. it also helped me look at alot of stuff i hadn't thought about yet, but also made me think of stuff that made me sad. i have still been in the phase of being sad i may not get to have my little baby... i hadn't thought of all the big girl/growing up stuff we may potentially miss. all in all one of the best buys i have ever made and i will read and re-read through my pregnancy. Thank you GAYLE!!!
-prayer requests for the next month-
+ pray for aaron and i's relationship
+ pray for Sophia to grow and be healed
+ pray for peace and understanding for us
+ pray for our families, as they are sad too and have been a great support
+thank you for caring and being willing to pray so generously for us. -tristen and aj